hope you ar still arround mi internet connection has been down for lyk a year so yh.  no she doesnt have epilesey as such but she does have drop fits where her legs give way so it can be  a pain sometimes to get her back up cos she is really heavy. she is 14 15 in june. yh we want to move her  out of herr secondary school because ...

it okay there are not many people that have it.  it limits her fine and gross motor skills, she cannot walk far and has only 2 words. BUT she understands everything you say so at times she get very fustrated and head buts/bangs and kicks (her special pedro boots hurt!!).

hey can you tell me a bit more about what that involves, Ive never heard of Angleman's before, what does the loss of the 15th chromosme inhibit her to do? I'm just curious...

My sis has Angleman's Syndrome. Angelman's Syndrome is where there is a partial or total deletation of th 15th chromosone.  i was just wondering if anyone cares for somone with angelmans syndrome???