Hi im Rachel and my older sister has retinitus pigmentosa (most ppl dnt understand wen i say that) and my mum is registered blind. I want 2 chat 2 sum1 nd make friends on here. Also does any1 else have a family member with my sisters condition bcoz it seems im the only 1 wiv sum1 in my family wiv that. Thanks :)

Hiya rach,

I dont care 4 sum1 with the same problem however i can empathise with you. If u need any help with anything im always here.

Kiwi

hi Rachel,im beth,no i dont have anyone in my family with ya sisters condition, sorry! but i do look after my mum who has Arthritis, i like cuming on this website, doctor who, going 2 my m8s houses & my sisters house n i  love BIG hugs!! how about u? what stuff do u like? 

hi kiwi,

 Thanks for that u 2.

Rach

hi rachel i dont care for anyone in your sisters condition but i do care for my mum who has a bad back and her botom disk(witch is to keep the spines rubbing against eachother) has disolved and she has to have epadurles witch only one worked on her once, in october she had to have a magure operation so she was took into hospital for half a week and the doctors cut through her tummy to have a replacement disk in. they stiched her back up and gave her lots of TLC but mum said the dinners were HORRIBLE!!!! she came back and her leg was realy numb and we found out that they had dameged a nerve now my mum has shooting pains down her left leg....

.....she is on strong medacation and has carers come in the mornins 2 dress and feed my bro in the mornins and take him 2 play group and she has 2 pick my bro up after school. my nanna who dameged her hip comes to help with my bro and me and on saturdays another carer witch sometimes dont show up comes to help play with my bro till 11 or ten o'clock! sounds like you have to help at home alot rachel and i feel sorry for you.....

.......try to help your mum and sis alot but at the same time i am sure you can take a break, your mum and sis will undrstand! if you like you can make a sceduel in some free time and write down what to do and what you do and then you have a good idea on what you have to do each day. i know i am bragging on about you helping and if you dont alot (not in an offencive way) dont interffear with that exept you could try to help and cheer people up it will make you feel better! i know you have alot of things to do so you could tell me about them on this thread! 

i hope you find this post helpfull :)

                                                                    tawney x x x xx

Rachel_B:

Hi im Rachel and my older sister has retinitus pigmentosa (most ppl dnt understand wen i say that) and my mum is registered blind. I want 2 chat 2 sum1 nd make friends on here. Also does any1 else have a family member with my sisters condition bcoz it seems im the only 1 wiv sum1 in my family wiv that. Thanks :)

i haven't got anyone in my family with the same condition as your sister but i feel sad when i learn there are more disablitilies than i thought. i have asperges as well but no-one understands it very well. i love this website, as i can say anything about mine and my sister's conditions. hope to hear from u soon. here some hugs for you. oooo :);)

hello evrybody im new and i have no freinds on this        

anybody want to be freinds?               

new peep inneed of freinds online !                                   

hi im beth, im 16, ill be ya friend, i care 4 my mum, who do u care 4?

dreed:

hello evrybody im new and i have no freinds on this        

anybody want to be freinds?               

new peep inneed of freinds online !                                   

sign me in for being your friend as well. im Rhys and im only 16 years old.

Hey Rhys hey Dreed

Hows both of you?

Lol

I be your friend xD

What sort of stuff you both into

hiya, im amz..i've nt gt ne1 in my immediate family with retinitus pigmentosa but my second cuison daughter has been diagnosed with it, they live in holand though so i don't see them often

so at least u knw ur not the only 1

amz x

hi im billy and my dad has diebeties and has kidney failure im 13 years old and feel stuck so please chat

hey im danielle i understand what ur going through im going through a bad time cause my mums disabled and my dads got depression and cant go out the house cause hes scared he hasnt been out for nearly a year now

 

im 15