Yes well as most of you would know from the chats, it is my brother who I care for. He is severely disabled, he cant really do anything apart from what a baby can do, and that is how it has always been. Kinda sad but that is life.
Recently my parents decided he was so severe he was to disabled for his current school, and the headmaster agreed. The school we want to send him to is private and we are not rich so we are trying to get the council to pay for it (I am telling you this because it leads on to 'the moral' of the blog) and we are getting different professionals to write about how Sam (my brother) needs to go to the private school.
We got the report from the Occupational Therapist....and oh boyo! Jesus it was horrible! It was a really good report but I was nearly crying by the end of it :(. It says CONFIDENTIAL on the front but I will give you some details. It said how his aims in lessons are things so small like to be aware of objects near him and to be able to recognise shapes...He is 16! The OT is saying he is alert and moves his head...this sounds so small to you but it was really emotional and personal for me and the thing it made me think the most was: what a life.
From the moment he was fertilised, it was as if he was condemned by God to have a life of constant chaos and pain...it is horrible, he cant talk any language, so that means, he cant think using words!! He is always going to be lifted in and out of bed, he will never be able to have fun with friends because he cant have friends because he cant recognise people! He has lived wiht my family his whole life but if he still does not recognise us...
We are alll so lucky, you can read, you can think...I feel so sorry for him but all we can do is try and make his life as pain free and comforted as possible...Zomg I remember a few months ago, when I looked at his life for the first time from his perspective, I cried the whole evening...his life is so horrible...
I am thinking this wasnt as good as my last blog post, but i just wanted to share that with you all :)